…Is a ‘happy week’! I’ve not yet posted anything about BWS yet (although I intend to very soon), but as well as Penelope’s regular screening, it is accompanied by AFP blood draws every six weeks to check the liver (it can detect tumours). Only another BWS parent knows the anxiety that comes with this. But, we have reason to be happy this week as we’ve had the lowest number yet. Yay! Celebratory lunch was had of course (see below).
I love her face on the bottom right, this is her newest expression, I’m translating it to mean “pass me the fruit NOW”.
Yellow and green for BWS awareness*
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