Well it would seem that November is the Awareness Month. So I am compiling all that are important to me in this one post.
Firstly it is Persistent Pulmonary Hypertension Awareness month. This, along with meconium aspiration, is the reason that Penelope needed her lifesaving ECMO treatment. http://pulmonaryhypertensionnews.com/pulmonary-hypertension-newborns/
There is also World Diabetes Day in November. Even though Penelope has the opposite of diabetes I am always drawn to anything to do with blood sugars as they have hypoglycaemia in common and know fully the daily worry that comes with it and glucometers, even from the opposite end of the spectrum. Many babies who have hyperinsulinism do go on to require a full pancreatectomy in order to “cure” their persistent and fatal hypoglycaemia and as a result end up with type one diabetes. So I do believe there is a cross over and I will be doing fundraising for diabetes in the future as I am a firm believer that if a cure for diabetes can be found, a cure for HI will shortly follow. http://www.diabetes.co.uk/World-Diabetes-Day.html
November also sees World Prematurity Day. Penelope and I will be wearing our favourite purple tee shirts it. Penelope’s NICU “room mate” Mylo of Mylo and Friends was born 10 weeks early and we followed behind him in each NICU room until finally “graduating” from NICU in the same week. His mum has gone on to do fantastic work for our local NICU and I am following suit. Find out more here: http://www.bliss.org.uk/world-prematurity-day-2015
Also linked to Hyperinsulinism and Beckwith Weidemann syndrome is Pancreatic Cancer Awareness month. Obviously it is the pancreas that is affected with hyperinsulinism causing the overproduction of insulin to be secreted. This can be down to a tumor on the pancreas. In BWS, kids are more likely to develop childhood cancer, namely kidney (Wilms), liver and pancreatic. So this is another awareness campaign close to my heart. http://www.pancreaticcancer.org.uk/campaigning-and-volunteering/get-involved